Freddie van Mierlo

Freddie van Mierlo

Liberal Democrat — Henley and Thame

Speaking in the House of Commons on 21 October 2025

Debate

NHS Trusts: Performance

Contribution

Oxford university hospitals trust is one of just three trusts that do not provide givinostat for Duchenne through the early access programme. Last week, I attended a roundtable at which one of my constituents, Alex, advocated on behalf of his son, Ben, who is not getting the treatment. We discussed lessons learned from the early access programme. Will the Secretary of State meet me, Duchenne UK and the all-party parliamentary group on access to medicines and medical devices so that we can share those lessons with him?

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