Marie Goldman

I thank the families who were at the rally outside Parliament today for their continuous fight, which is a battle that has been going on for many years. It was wonderful to see so many of them keeping up the fight and making sure that MPs are hearing their stories. That is why so many hon. Members are in the room today. I could tell Members about the stories that those families told me just today. One parent has been waiting 91 weeks to get an EHCP. Another parent told me about the rigid attendance rules that punish children who are unable to attend school because of their special educational needs. One grandmother was in tears because she was worried that she would not be able to get the support that her granddaughter needed. Most of all, they told me about the worry that the EHCP rug would be pulled from underneath them, with nothing left to catch them. That is what I am particularly worried about. I am sorry that the Minister is not in her place at the moment, but if she were, I would say to her that parents need the support to be there. Any new system has to be properly tested. It also has to be trusted by parents, and that trust simply is not there at the moment. I say to the Government: tread very carefully, because parents are really worried, and they will be very cross indeed if they do not get the support they absolutely need. Governments do not have a very good reputation for getting things right: think of the many disabled children affected by the Primodos scandal, or the terrible birth defects suffered because of sodium valproate. They have special educational needs and disabilities too, and they all need support.