Josh Newbury

Josh Newbury

Labour — Cannock Chase

Speaking in the House of Commons on 10 September 2025

Debate

Engagements

Contribution

Q6. My constituent Connor Edwards lives with Ehlers-Danlos syndrome and craniocervical instability, which, in his words, means his head is slowly falling off his body. Having once enjoyed fishing and mountain biking, at the age of 30 Connor is now largely bed-bound and says his condition has destroyed his quality of life. He is having to crowdfund for treatment in Spain because the NHS cannot give him the help he needs. Will the Prime Minister ensure that I, Connor and EDS charities have a meeting with the Minister to discuss what more we can do to give thousands of people like Connor their freedom back?

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