Carla Lockhart

Carla Lockhart

Democratic Unionist Party — Upper Bann

Speaking in the House of Commons on 22 July 2025

Debate

Metachromatic Leukodystrophy Screening

Contribution

In my constituency, there is a little boy called Teddy, who was diagnosed with MLD—one of the most cruel and degenerative diseases, which is now treatable if diagnosed at birth. Teddy was diagnosed too late because there was no screening. He has lost his ability to walk and talk, and he even fights to smile—a battle that no child should ever have to face. The Minister knows that the treatment is now available, yet MLD has not been added to the simple heel-prick screening tests. Will she also agree to meet Teddy’s family when she meets the family mentioned by the hon. Member for Hertford and Stortford (Josh Dean) to discuss this issue? It is too late for Teddy, but for so many other children it is not.

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