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Lord Sharkey (LD)

Speaking in the House of Lords on 22 July 2025

Debate

Duchenne Muscular Dystrophy: Givinostat

Contribution

My Lords, I declare an interest as a trustee of Muscular Dystrophy UK. Following the previous question, can the Minister say whether the early access programme really works? How many other drugs have been licensed under the programme, how many were eventually approved by NICE and how many were declined? If the application for NICE approval of givinostat is unsuccessful, what will happen to the patients currently undergoing treatment with the drug? Will that depend partly or entirely on the pharmaceutical company that makes the drug?

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