B

Baroness Burt of Solihull (LD)

Speaking in the House of Lords on 22 July 2025

Debate

Duchenne Muscular Dystrophy: Givinostat

Contribution

My Lords, currently only 70 of the 500 children with Duchenne are accessing the trial of givinostat. We are hoping for a decision on 18 December from NICE, but my worry is about how long the rollout will take for sufferers and their parents. They want to know how long it will take for those who are not included in the fortunate 70 currently receiving givinostat, and for others in categories that may also be helped.

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