Dame Siobhain McDonagh

When we talk about children’s health, we often think about the start of life—safe births, vaccinations and early years support—but we also need to talk about those children whose lives will be short, those with life-limiting and life-threatening conditions. Across the country, families caring for a seriously ill child face unimaginable challenges, yet too often the support they need simply is not there, especially at the end of life and especially at home. In my constituency, we are incredibly fortunate to be served by Shooting Star Children’s Hospices, which supports over 700 children and families across 14 boroughs and throughout Surrey. However, because the number of children needing that care in each individual borough is small, those children can easily be overlooked. That is the problem with a system built around commissioning at such a local level: when the numbers are low, the needs get lost. That is why the ringfenced central funding—formerly the children’s hospice grant—is so important. It supports hospices such as Shooting Star to provide respite, symptom management, bereavement support and end-of-life care, and helps give families choice at the hardest possible time. I welcome the Government’s decision to confirm £26 million for children’s hospices in NHS England’s funding for 2025-26, alongside £100 million in capital investment across all hospices. The truth is that the sector remains under real strain. According to Together for Short Lives, the leading voice for children’s palliative care, just 19% of ICBs formally commission 24/7 end-of-life care at home, and a third are still failing to meet even the basic national standards. I have three questions for the Minister: will the Government commit to maintaining and increasing the children’s hospice grant beyond 2025-26? Will they launch a proper review of how children’s palliative care is funded and planned, and will the Minister hold ICBs to greater account to ensure they meet their legal duty to commission that care and report transparently on progress? We are told that the 10-year NHS plan will bring care closer to home, but right now, there is no mention of children’s palliative care in that plan and no clarity on how those vital services will be funded. That has to change.