Alison Hume

I rise to speak in support of new clause 11 and amendment 38. I am incredibly relieved that the Government have listened—most importantly, they have listened to the people who will be affected by changes to PIP—and taken clause 5 out of the Bill. The terms of reference for the Timms review have already been set without involving disabled people, but there is a chance with new clause 11 to ensure that it moves forward in a truly co-produced way. What worries me is that without the proposals in the new clause, the Bill highlights the need for co-production but provides no assurances that it will be comprehensively done. Disabled people must feel that any changes to the welfare system are made properly with them rather than done to them. I have walked in the shoes of families in my constituency bringing up children with special educational needs and disabilities. For decades, my son and I have been caught up in the endless cycle of assessments, mandatory reconsiderations and tribunals. That is a situation familiar to many who have turned to the DWP for help to manage life with a disability or disabilities. This is the reason that so many disabled people are terrified of the Government’s proposed changes: the DWP is too frequently at war with the people it is supposed to protect. Too frequently, it lets down the most vulnerable in our community, and it mostly gets away with it. Recently, the incredible Joy Dove won an eight-year legal fight to link her daughter Jodey Whiting’s suicide to the stopping of her benefits, which the DWP admitted was a mistake. Jodey’s avoidable death is not the only one. DWP decisions often seem to be completely arbitrary. Once, when I was waiting to go into a tribunal, I received a call from the DWP offering to reinstate my son’s benefits if I dropped the tribunal. That experience cemented in my mind something that I believe to this day: the culture of the DWP is hostile to disabled people. That culture must change if we are to have any chance of building a sustainable, fair and compassionate welfare system for the future. A constituent of mine in Scarborough and Whitby suffers from a variety of complex physical and mental health conditions, including PTSD, attention deficit hyperactivity disorder, anxiety disorder, polycystic kidney disease and liver disease. In May, after reporting a deterioration in his health, he submitted new evidence to support reassessment for a higher rate of PIP, which led to the DWP removing his award entirely. He was left with no income or support despite his ongoing need for care. This is the reality: many disabled people who are turned down for PIP rely on the health element of universal credit. Many of my constituents have fluctuating conditions, such as MS, ME and mental health conditions. The reality of their conditions means that during periods of remission they return to employment. However, once their condition deteriorates, they return to universal credit. If that happens, with this Bill they would return on a lower level than before, down to just £50 a week. That completely ignores the realities faced by disabled people and their experience of their conditions. Without the protections provided for in amendment 38, we would create a two-tier system where people with unpredictable conditions would be valued less than those with more predictable ones. I urge hon. Members to support new clause 11 and amendment 38. I also ask the Government to please pull the Bill. Even at this late stage, let us get it right for the people who really matter; let us get it right for disabled people.