Freddie van Mierlo

Freddie van Mierlo

Liberal Democrat — Henley and Thame

Speaking in the House of Commons on 12 June 2025

Debate

Duchenne Muscular Dystrophy

Contribution

I thank the hon. Gentleman for securing this debate. I have been engaging with the Oxford NHS trust, which is not yet providing givinostat to boys in Oxfordshire. Its own business case suggests that it would cost less than £2,000 per boy and £66,000 in total for the 35 boys. Clearly, as a country, we should be able to afford such a sum. Does he agree that a hospital that wants to be world-leading should be providing it? Does he further agree that this is exactly the sort of thing we need Government intervention on, so that these boys can get treatment as soon as possible?

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