Euan Stainbank

Euan Stainbank

Labour — Falkirk

Speaking in the House of Commons on 12 June 2025

Debate

Duchenne Muscular Dystrophy

Contribution

I thank my hon. Friend for securing this debate. It is important to acknowledge quality of life with this drug, but we also have to acknowledge that many people with Duchenne are living with 24/7 care needs, including my constituent, Dylan Phillips, who lives at the excellent care home in Glenbervie. Does my hon. Friend agree that those living with Duchenne in Scotland should be protected as they would be in England under continuing healthcare schemes, rather than having to bear the cost of their social care and living on only £35.90 a week with universal credit and adult disability payment, as they do not qualify for continuing healthcare in Scotland?

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