Alison Hume

It is a pleasure to serve under your chairmanship, Mr Efford. I thank my hon. Friend the Member for Bury St Edmunds and Stowmarket (Peter Prinsley) for securing this extremely important debate. He speaks from a position of great experience. He rightly points to a holistic approach, putting the patient at the centre of their treatment. By 2035, two thirds of the UK population aged over 65 are expected to be living with two or more long-term conditions, whether chronic obstructive pulmonary disease, Parkinson’s, diabetes or epilepsy. Living with an LTC can significantly reduce a person’s quality of life. I rise to speak on behalf of those living with a condition that affects approximately 1.5 million women in the UK: endometriosis. This chronic condition, whereby tissue similar to the lining of the womb grows outside the uterus, causes debilitating pain, fatigue and often infertility, yet despite its prevalence it remains under-recognised and undertreated, like so many conditions that affect women. The average time to diagnose in the UK is more than eight years. Many women visit their GPs multiple times before receiving a referral, and some are forced to turn to private healthcare due to the lengthy NHS waiting times. That delay not only exacerbates the condition’s physical symptoms but impacts mental health and quality of life. Endometriosis is not merely a health issue for women; it is a public health issue that costs the UK economy. Over half of those affected have taken time off work due to endometriosis, and many fear job loss or reduced income. My constituent, Angela Tiernan, has thoracic endo-metriosis, a rare form of the condition where tissue similar to the uterine lining grows in the chest cavity, commonly affecting the diaphragm and lungs. Angela recently found out that planned surgery to confirm her diagnosis and reformulate a treatment plan would no longer be going ahead as the specialist Oxford University Hospitals has stopped commissioning the surgery, as have other specialist centres in London and Bristol. Angela has told me that patients are being advised to go private to access required treatments and surgeries that were previously available through the NHS, but have since been cancelled by the hospital. My constituent Angela and other women are now left in a position with no diagnosis and no access to investigation, care or treatment unless they can afford to go private. Endometriosis is a long-term condition that requires a long-term solution. I ask the Minister for reassurance that endometriosis is addressed in our 10-year-plan.