Lillian Jones

It is a pleasure to serve under your chairmanship, Ms Furniss, and I thank the Backbench Business Committee for securing this important debate. The Hughes report makes for grim reading, as we have to read about the twin scandals of sodium valproate and pelvic mesh. Both scandals have one thing in common: the lack of provision of timely, accurate information to patients about the benefits, as well as the risks, of the treatments offered to them. Many people rely on treatment with sodium valproate to effectively manage their epilepsy, and for many it is a remarkable drug that allows them to control their condition and lead a life free from the worry of epileptic seizures. However, a constituent experienced severe side effects from it, with no warnings and no information on the risk to pregnancy from taking it. In my constituency of Kilmarnock and Loudoun, a family approached me to press for action on compensation for families impacted by sodium valproate. My constituent’s daughter was born with autism as a direct result of the sodium valproate she was prescribed to control her epilepsy. She has been left feeling guilt and self-blame for her daughter's condition, as many mothers would, given the challenges her daughter has had to endure growing up and managing in an education system where getting the right adjustments was a constant battle. My constituent and her family have faced the consequences of the lack of information and advice for pregnant women regarding sodium valproate. It is not fair, it should not have happened and it could have been prevented.  It is depressing that we have seen an array of similar medical scandals, as well as the scandal of the Horizon system in post offices. All of those have one significant factor in common: information being withheld, with public bodies showing a complete lack of transparency, rather than being open to addressing serious issues from the outset. The latter would have prevented much distress and anguish and, in the case of sodium valproate, many children from being born with lifelong medical conditions. But here we are again, after the event, looking quite rightly at a public wrong, and with the Hughes report, published in February 2024, outlining options for redress. The previous Conservative Government did what they always did: kicked the cans down the road, leaving impacted women and families in limbo and making no financial provision to pay for the redress that families rightly deserve. It is a scandal that Opposition Members should be apologising to all affected families for. The Labour Government are faced once again with the responsibility to pick up the mess left by the Tories, by responding to the Hughes report. I will continue to press the Government to do the right thing, which I know they want to do.