Dr Sam Rushworth

I thank my hon. Friend the Member for Edinburgh South West (Dr Arthur) for bringing the Bill to the House, and join him in paying tribute to our hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) for her campaigning, and for her powerful speech calling for a revolution in attitudes. I also thank my hon. Friend the Member for Calder Valley (Josh Fenton-Glynn) for his very moving speech. As somebody who lost a brother much too young, I was deeply moved by his words. I have come here today to speak on behalf of my constituent, Katie Swinburne. She is a much-loved school teacher—in fact, she was the school teacher of one of my staff—and a mother of three who was diagnosed with invasive lobular breast cancer. As was mentioned a moment ago, lobular breast cancer is not classed as a rare cancer—in fact, it is the second most common type of breast cancer in the world, with 8,500 diagnoses annually in the UK alone—but it shares many characteristics of rare cancers in the sense that it is very difficult to detect. In Katie’s case, as in many others, it did not initially form as a lump in the breast, for example. It has distinct genetics, so is not detectable in genetic tests, and it is very easily missed in mammograms and ultrasounds. As a consequence, many of the women who get this form of cancer will not be diagnosed until long after it has already spread. I am also told—thankfully, Katie is watching today; I received a WhatsApp message from her a moment before speaking—that a key point that I should make to the Minister is that, because lobular breast cancer presents differently from other forms of breast cancer and is not separated out in clinical trials, there is very little trial data on it. I met recently on Zoom with Katie and others who have been campaigning for the moonshot. This is not a lot of money; it is simply £20 million of funding that the University of Manchester could use to better understand the biological architecture of this type of cancer. That would lead to the possibility of developing the right treatments, because it currently has no specific treatment. This is a gentle request, really, that in the next stage of the Bill lobular breast cancer be considered alongside the rare cancers for which it already provides. I finish by paying tribute to Katie and all the many brave individuals I have met. I cannot imagine what it is like to be young and have parenting responsibilities and be diagnosed with an advanced stage of cancer. Many of those campaigning know that they might not live to see the day when the better drugs and treatments are available, but they are bravely taking up this cause on behalf of those who come after them. Katie was bravely doing a mile a day sponsored walks. My predecessor in this place joined her on one of those miles, and although we disagree about many things politically, we have already seen today that this is a cause that unites, because there is little—in fact, there is nothing—more precious in life for any of us than time spent with the people we love. Money cannot buy that—nothing can buy that—and, as my hon. Friend the Member for Mitcham and Morden made clear, the decisions we make in this place can have a real impact in the lives of others.