Mr Connor Rand

Mr Connor Rand

Labour — Altrincham and Sale West

Speaking in the House of Commons on 30 January 2025

Debate

Business of the House

Contribution

Duchenne muscular dystrophy is a severe progressive muscle-wasting disease that affects around 2,500 people in the UK, including Felix from my constituency. Felix’s mum, Lisa, has told me about Givinostat, a promising new treatment that could be transformative. However, not all NHS trusts are signed up to the early access programme for the drug, even though it is free. That needs to change, so could we have a debate or a statement on Duchenne muscular dystrophy and how we can improve access to treatments for it?

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