Clive Efford

Clive Efford

Labour — Eltham and Chislehurst

Speaking in the House of Commons on 23 January 2025

Debate

Business of the House

Contribution

I have a 13-year-old constituent who suffers with Duchenne muscular dystrophy, a muscle-wasting disease that he was diagnosed with at age 11, which is very late, due to what is called a spontaneous mutation. None the less, the condition has progressed rapidly. There is medication—givinostat—that can delay the advancement of the illness. It is being made available free to the NHS, but the hospitals that want to use it on their patients need some financial assistance to roll it out as part of an early access programme. May we have a statement from the Department of Health and Social Care on the issue, so that we can make representations on behalf of our constituents who suffer with Duchenne?

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