Contribution
My Lords, I too thank the noble Baroness, Lady Kidron, for all her amendments in this group, and I thank the Minister for his amendment.
Amendment 15 seeks to maintain the high level of legal protection for children’s data even where protections for adults may be eased in the context of scientific research. I acknowledge the concerns raised about the potential implications that this amendment could have for medical research and safeguarding work. It is important to recognise that young people aged 16 and over are entitled to control their medical information under existing legal frameworks, reflecting their ability to understand and consent in specific contexts.
There is a legitimate concern that by excluding all children categorically, including those aged 16 and 17, we risk impeding critical medical research that could benefit young people themselves. Research into safeguarding may also be impacted by such an amendment. Studies that aim to improve systems for identifying and preventing abuse or neglect rely on the careful processing of children’s data. If this amendment were to inadvertently create a barrier to such vital work, we could find ourselves undermining some of the protections that it seeks to reinforce.
That said, the amendment highlights an important issue: the need to ensure that ethical safeguards for children remain robust and proportionate. There is no question that the rights and welfare of children should remain paramount in research contexts, but we must find the right balance—one that allows valuable, ethically conducted research to continue without eroding the legal protections that exist for children’s data. So I welcome the intent of the amendment in seeking to protect children, of course, and I urge us, as the noble Lord, Lord Stevenson, put it, to continue working collaboratively to achieve a framework that upholds their rights without hindering progress in areas that ultimately serve their best interests.
As with the previous amendment, I recognise the intent of Amendment 16, which seeks to protect children’s data by excluding them from the scope of recognised legitimate interests. Ensuring that children continue to benefit from the highest level of legal protection is a goal that, needless to say, we all share. However, I remain concerned that this could have less desirable consequences too, particularly in cases requiring urgent safeguarding action. There are scenarios where swift and proportionate data processing is critical to protecting a child at risk, and it is vital that the framework that we establish does not inadvertently create barriers to such essential work.
I am absolutely in support of Amendment 20. It provides an important safeguard by ensuring that children’s data is not used for purposes beyond those for which it was originally collected, unless it is fully compatible with the original purpose. Children are particularly vulnerable when it comes to data processing and their understanding of consent is limited. The amendment would strengthen protection for children by preventing the use of their data in ways that were not made clear to them or their guardians at the time of collection. It would ensure that children’s data remained secure and was not exploited for unrelated purposes.
On Amendment 22, the overarching duty proposed in this new clause—to prioritise children’s best interests and ensure that their data is handled with due care and attention—aligns with the objective that we all share of safeguarding children in the digital age. We also agree with the principle that the protections afforded to children’s data should not be undermined or reduced, and that those protections should remain consistent with existing standards under the UK GDPR.
However, although we support the intent of the amendment, we have concerns about the reference to the UN Convention on the Rights of the Child and general comment 25. Although these international frameworks are important, we do not believe they should be explicitly tied into this legislation. Our preference would be for a redraft of this provision that focused more directly on UK law and principles, ensuring that the protections for children’s data were robust and tailored to our legal context, rather than linking it to international standards in a way that could create potential ambiguities.