Contribution
My hon. Friend is absolutely right. We should be doing everything, especially in the first few weeks, days and months of a diagnosis, to make it as comfortable for a child as possible. Adults who get cancer have a circle of friends around them and can cope with it. I have no idea what it is like for a child, but I can imagine that it is very difficult, so having a play area and things they are familiar with using must make that experience much easier.
I want to ask the Minister if, as per the principles of the existing special rules process, he will consider using medical diagnosis to allow children and young people with cancer to apply for benefits as soon as their diagnosis is confirmed. Does he also recognise that the special rules process in its current form is flawed? One young person treated in London was awarded DLA only a few weeks before they sadly died, despite using the special rules process, which should have expedited their benefits. The stress placed on their family was significant.
I pay tribute to the campaign of Ceri and Frances Menai-Davis to establish Hugh’s law, in the name of their six-year-old son, who tragically died from a rare form of cancer. Their story is heartbreaking, but is unfortunately a common reality for parents who are forced into darkness. At one of the lowest moments in their life, with the Government looking away from them, support is a struggle to access, rather than a guarantee. I personally endorse the objectives of Hugh’s law: for financial aid to be granted to the parents of chronically sick children from day one and for the removal of the three-month qualifying period, which Young Lives vs Cancer has also called for. Its research is right that, for a very small cost, the Government could transform the lives of thousands by delivering parents a limited-time, non-means-tested benefit to cope as their lives completely change.
I met Ceri on Monday to discuss her campaign, and I attended the Hugh’s law event today on the Terrace pavilion. Hearing directly about people’s lived experience and from experts at that event reinforced why we urgently need change. Does the Minister support Ceri and Frances’s campaign for Hugh’s law? If not, will he explain why?
PIP and DLA are not the only benefits to be severely delayed by a system that does not work. Carers can apply for carers’ allowance and other associated carer support only once PIP and DLA have been approved for the young cancer patient they are caring for. That means that carers may be caring for many months before they can apply for carers’ benefits and get what they are entitled to.
I could continue. There exists a loophole in universal credit whereby young people who are at university when they are diagnosed with cancer and then defer their course, with the aim of restarting it when they finish treatment, are not entitled to student finance because they are not actively attending university. However, they not entitled to universal credit either because they are still classed as “in education”. Students should not be forced to totally drop out and start university from the beginning. To state the obvious, a cancer diagnosis is not their fault, and forcing them to disrupt their lives even further is completely pointless. Will the Minister look at the broader welfare support system in relation to children and young people with cancer, in co-operation with expert charities, to close other loopholes and ensure that the full package of support meets their needs?
There are too many points to raise in just one debate, but I would like to conclude on a slightly more optimistic note, following the confirmation from the Department of Health and Social Care that the children and young people cancer taskforce will be launched this year, and that it will seek to identify ways to improve the experience and outcomes for children and young people with cancer. Although I await the specifics of the relaunch of the taskforce, the principles are of good intention. I know that the hon. Member for Gosport (Dame Caroline Dinenage) has been an incredible champion of this project. Will the Minister work with the Department of Health and Social Care to ensure that the children and young people cancer taskforce looks at psychosocial support, which is something I could not address in my speech, along with welfare. Will he also make representations to the Health Minister to ensure that this new body links appropriately with the long-term cancer strategy for England?