V

Viscount Camrose (Con)

Speaking in the House of Lords on 18 December 2024

Debate

Data (Use and Access) Bill [HL]

Contribution

I thank the Minister for her answer, and I very much accept her offer of engagement. I will make a few further brief comments about the importance of this amendment, as we go forward. I hope that other noble Lords will consider it carefully before Report. I will set out a few reasons why I believe this amendment can benefit both the Bill and this country. The first is its scope. The amendment will allow the Secretary of State and the Information Commissioner to assess data security risks across the entirety of the genomic sector, covering consumers, businesses, citizens and researchers who may be partnering with state-linked genomics companies. The second reason is urgency. DNA is regularly described as the “new gold” and it represents our most permanent identifier, revealing physical and mental characteristics, family medical history and susceptibility to diseases. Once it has been accessed, the damage from potential misuse cannot be researched, and this places a premium on proactively scrutinising the potential risks to this data. Thirdly, there are opportunities for global leadership. This amendment offers the UK an opportunity to take a world-leading role and become the first European country to take authoritative action to scrutinise data vulnerabilities in this area of critical technology. Scrutinising risks to UK genomic data security also provides a foundation to foster domestic genomics companies and solutions. Fourthly, this amendment would align the UK with key security partners, particularly, as my noble friend Lord Bethell mentioned, the United States, which has already blacklisted certain genomics companies linked to China and taken steps to protect American citizens’ DNA from potential misuse. The fifth and final reason is protection of citizens and consumers. This amendment would provide greater guidance and transparency to citizens and consumers whose DNA data is exposed to entities linked to systemic competitors. With all of that said, I thank noble Lords for their consideration and beg leave to withdraw my amendment.

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