B

Baroness Jones of Whitchurch (Lab)

Speaking in the House of Lords on 10 December 2024

Debate

Data (Use and Access) Bill [HL]

Contribution

I am not quite sure about the groupings, either, but let us go with what we have. I thank noble Lords who have spoken, and the noble Viscount, Lord Camrose, for his amendments. I hope I am able to provide some reassurance for him on the points he raised. As I said when considering the previous group, the Bill does not expand the definition of scientific research. The reasonableness test, along with clarifying the requirement for researchers to have a lawful basis, will significantly reduce the misuse of the existing definition. The amendment seeks to reduce the potential for misuse of the definition of scientific research by commercial companies using AI by requiring scientific researchers for a commercial company to submit their research to an ethics committee. As I said on the previous group, making it a mandatory requirement for all research may impede studies in areas that might have their own bespoke ethical procedures. This may well be the case in a whole range of different research areas, particularly in the university sector, and in sectors more widely. Some of this research may be very small to begin with but might grow in size. The idea that a small piece of start-up research has to be cleared for ethical research at an early stage is expecting too much and will put off a lot of the new innovations that might otherwise come forward. Amendment 80 relates to Clause 71 and the reuse of personal data. This would put at risk valuable research that relies on data originally generated from diverse contexts, since the difference between the purposes may not always be compatible. Turning to Amendment 67, I can reassure noble Lords that the concept of broad consent is not new. Clause 68 reproduces the text from the current UK GDPR recitals because the precise definition of scientific research may become clear only during later analysis of the data. Obtaining broad consent for an area of research from the outset allows scientists to focus on potentially life-saving research. Clause 68 has important limitations. It cannot be used if the researcher already knows the specific purpose—an important safeguard that should not be removed. It also includes a requirement to give the data subject the choice to consent to only part of the research processing, if possible. Most importantly, the data subject can revoke their consent at any point. I hope this reassures the noble Viscount, Lord Camrose, and he feels content to withdraw his amendment on this basis.

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