M

Member

Speaking in the House of Lords on 10 December 2024

Debate

Data (Use and Access) Bill [HL]

Contribution

Given that existing transparency obligations generally do not require contact to be made with each data subject, it is hard to envisage how using methods that can reach large numbers of individuals at once would require disproportionate effort, such that it would impair the progression of research. Conversely, failure to be transparent may impair research if a loss of public trust occurs. Any reduction in transparency requirements is a backwards step in promoting confidence in the use of health data, given the very close relationship between transparency and public trust.

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