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Lord Stevenson of Balmacara (Lab)

Speaking in the House of Lords on 10 December 2024

Debate

Data (Use and Access) Bill [HL]

Contribution

My Lords, I thank those who participated in this debate very much indeed. It went a little further than I had intended in drafting these amendments, but it has raised really important issues which I think we will probably come back to, if not later in Committee, certainly at Report. At the heart of what we discussed, we recognise, as the noble Baroness, Lady Kidron, put it, that our data held by the NHS—if that is a better way of saying it—is valuable both in financial terms and because it should and could bring better health in future. Therefore, we value it specifically among some of the other datasets that we are talking about, because it has a returning loop in it. It is of benefit not just to the individual but to the UK as a whole, and we must respect that. However, the worry that underlies framing it in that way is that, at some point, a tempting offer will be made by a commercial body—perhaps one is already on the table—which would generate new funding for the NHS and our health more generally, but the price obtained for that will not reflect the value that we have put into it over the years and the individual data that is being collected. That lack of trust is at the heart of what we have been talking about. In a sense, these amendments are about trust, but they are also bigger. They are also about the whole question of what it is that the Government as a whole do on our behalf in holding our data and what value they will obtain for that—something which I think we will come back to on a later amendment. I agree with much of what was said from all sides. I am very grateful to the noble Lords, Lord Kamall and Lord Holmes, from the Opposition for joining in the debate and discussion, and their points also need to be considered. The Minister replied in a very sensible and coherent way; I will read very carefully what he said in Hansard and we accept his kind offer of a technical briefing on the Bill—that would be most valuable. I beg leave to withdraw the amendment.

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