Contribution
I pay tribute to my hon. Friend the Member for Gedling (Michael Payne) for his maiden speech. It is clearly special for him to represent the area in which he grew up. He has so much personal experience and memories, and he spoke passionately about his family. I am sure they are very proud of him today, and that he will be an excellent representative for Gedling. I remember his Labour predecessor well. We were both elected on the same day, and perhaps I can challenge my hon. Friend a little and say that he has big boots to fill as his predecessor was an excellent Member of Parliament.
It is worth reminding ourselves of how we got to this stage. In spite of everything we have heard about the excellent progress being made in response to Sir Brian Langstaff’s report, there is still an enormous amount of frustration out there among victims and their families. In the 1970s and 1980s, as many as 6,000 people with haemophilia and other bleeding disorders were treated with factor concentrates contaminated with HIV and hepatitis viruses. Almost all of them were infected with hepatitis C, and around 1,250 people, including 380 children, were also infected with HIV. Some of those unintentionally infected their partners or other family members. More than three quarters of those infected with HIV have since died, as have around one third of those infected with hepatitis C. Of those still alive, many are in poor health due to liver damage, or from living with long-term HIV. Additionally, around 26,800 people were given blood transfusions that were infected with hepatitis C. All that was avoidable.
By the 1970s, blood and blood products were already known to transfer viruses. It was known that the use of pooled blood products significantly increased the risk of infections. Those risks were ignored by leading clinicians, Ministers and civil servants, and they failed to take appropriate action to end the use of those products and ensure the use of safer products. Pharmaceutical companies and leading clinicians did not share appropriate information about risks with patients and patient groups. They failed in their duty of candour. It is no wonder that the victims of those crimes mistrust the state—the state that should be there for them, to protect them and be on their side.
We are here because, despite many dying along the way, and with one victim dying every four days, the surviving victims refused to give up. They refused to be defeated. They won their battle, and over and above that they won the right to be included in the decisions, as Sir Brian Langstaff made clear in his report. All along, the victims have been lied to, refused access to information, their records have mysteriously gone missing, and more recently they have found themselves repeatedly let down by the Government, it has to be said, in the form of the Cabinet Office.
The Cabinet Office controls the decisions of the Infected Blood Compensation Authority. I hear what the Paymaster General and Minister for the Cabinet Office said to me earlier about operational independence, but ultimately the Cabinet Office is making the decisions and victims are not included in the way that Sir Brian recommended. Victims feel that decisions are being made without their involvement. Those suffering with hepatitis C feel particularly excluded and do not feel that their suffering has been fully recognised in the compensation scheme.
In his interim report, Sir Brian Langstaff said that there should be an arm’s length body. I will not read the whole recommendation, but he said:
“I recommend that an Arms Length Body…should be set up to administer the compensation scheme, with guaranteed independence of judgement, chaired by a judge of High Court or Court of Session status as sole decision maker”.
The report goes on to state that the body should
“involve potentially eligible persons and their representatives amongst those in a small advisory panel, and in the review and improvement of the scheme; and…permit the hearing of applicants in person.”
None of that is part of the compensation process, yet it is clearly there in the report, and it was Sir Brian Langstaff’s intention that the victims should be involved much more.