Member

Urgent dialogue is vital, because these delays are causing real hardship for dying affected persons who have no chance of interim payments because of the delay. One is the mother of a child sandwiched between her infected father and child. She has had to give up her whole life to care, having already lost her father and mother young. This mother and her husband are very ill; they need the interim payment for care to relieve their suffering. Then there is Helen, an affected person who is already in the system and who is clearly entitled to payments. She is terminally ill with stage 4 ovarian cancer. She has been told that she is unlikely to survive the publication of the second regulations, let alone their anticipated rollout in 2025. For her, an urgent interim payment would provide funds for her to be able to pay more for care and support than she can afford now. Later will not do.