Caroline Voaden

Thank you, Dr Allin-Khan. I also thank my hon. Friend the Member for Chesham and Amersham (Sarah Green) for securing this important debate. Last Saturday marked two years since the publication of the Hughes report—two years since Patient Safety Commissioner Dr Henrietta Hughes set out clear and compassionate recommendations for redress for those affected by sodium valproate and pelvic mesh. Yet two years on, families are still waiting, women are still suffering, children are still living with devastating disabilities, and the Government are still silent. Like many other speakers this morning, I salute the courage of all those who have campaigned so hard on this issue for so long, many of them doing so while living with devastating injury. I would like to share the human cost of this scandal by giving an example of a life destroyed by a medical procedure that was badly performed and that went horrifically wrong. That has been the experience of my constituent, Susan. In 2009, Susan underwent a transvaginal tape procedure for mild stress urinary incontinence. The mesh was catastrophically misplaced, causing immediate and lasting harm. Within months, her health had deteriorated so badly that she was forced to close her Care Quality Commission-registered medical clinic, and to abandon a professional career that she had built up over three decades. Believing the mesh to be the cause of her poor health, Susan sought help and was referred to a surgeon presented to her as an expert in mesh removal. She gave clear written consent for the removal of all remaining mesh. Instead—unbelievably—an additional reconstructive procedure was carried out without her knowledge or consent. It was never discussed beforehand and never explained afterwards. It was not even disclosed to her GP. Susan was then told that the mesh was “probably all removed”. It was not. Years later, specialist MRI imaging confirmed that substantial mesh remained embedded in her pelvis and abdominal wall. However, by the time the truth became clear, she was out of time to pursue a legal claim. Recently, when Susan tried to pursue her case again, the legal system demanded over £10,000 for a barrister’s opinion. Given the loss of her high-end professional career, she no longer had the financial means to proceed. The financial ruin caused by the mesh injuries effectively barred her from accessing the courts and seeking the compensation that she so rightly deserves. Today, she lives with constant pain, severe incontinence, chronic infection and profound psychological trauma. Her financial losses run into the hundreds of thousands of pounds, and she is still waiting for a Government response that should have come two years ago. I will share another constituent’s experience. In 2016, Caroline underwent mesh insertion. Within just three weeks, serious complications began, but what followed was not prompt medical care; it was six years of being repeatedly dismissed and gaslighted by multiple healthcare professionals, including the very surgeon who had implanted the mesh. When Caroline expressed concerns during an internal examination, the surgeon’s demeanour changed significantly for the worse. Her symptoms continued to be disregarded and for 12 months she had to self-advocate persistently before finally being referred to a specialist mesh complications service. The specialists identified that the mesh had twisted, leaving Caroline with no option but full mesh removal surgery. That surgery took place in July 2023, more than seven years after the original procedure. The impact on her life has been devastating. She has endured years of significant physical pain and declining health. She has been forced to become financially dependent on her personal savings, as her ability to work has been severely limited. Universal credit and NHS travel support are means-tested, leaving her out of pocket for essential medical travel and other related expenses. Susan’s story is not just one person’s story, and neither is Caroline’s. Across the country, thousands of women are living with that reality every single day. Women are living with chronic pain, infections and life-altering complications from pelvic mesh implants. That mesh was supposed to help them, but instead it eroded into their organs, caused urinary problems and bleeding, and left them unable to work, exercise or have intimate relationships with the people they love—in short, unable to live normal lives. As well as that, children are living with devastating neurodevelopmental disorders and birth defects caused by sodium valproate exposure in the womb. Parents are at breaking point, struggling with the emotional, practical and financial burden of caring for children whose conditions were entirely preventable. As Janet Williams and Emma Murphy, two mothers of children with foetal valproate syndrome, wrote to the Prime Minister and Chancellor: “Families affected by sodium valproate exposure do not have the luxury of time. The children are growing, their care needs are increasing, and their families are at breaking point.” Let me remind the House of the timeline of this shameful delay. In July 2020, the Cumberlege review recommended urgent redress. The Government refused. Two and a half years later, they finally tasked the Patient Safety Commissioner to look at the issue again. On 7 February 2024, two years ago last Saturday, Dr Henrietta Hughes published her report. It was unequivocal in calling for an independent redress scheme, including £100,000 interim payments for valproate victims, and comprehensive medical and financial support for mesh survivors. Those were not radical demands; they were the minimum response required to address preventable tragedies that have devastated thousands of lives, yet the response remains a hollow promise of careful consideration. There was no published response from the previous Government, and 18 months into this one, we are still told that action will come in due course. The delay is not just a bureaucratic failure, but part of a disturbing pattern seen in the Primodos and infected blood scandals. It is a pattern where women and vulnerable patients are ignored, evidence is dismissed and recommendations are left to gather dust. Running through it all, as Susan and Caroline’s cases demonstrate so starkly, is a persistent culture of cover-up and denial. Compensation alone is not enough. We must ensure that such harm is never inflicted again. The Liberal Democrats are calling for a policy response that protects patients from the horrors of mesh implant side effects in absolute terms, with a full and continuing moratorium. Far too often, the recommendations from inquiries into medical scandals are neglected. There should be annual reporting to Parliament on progress, including on how the Government are addressing every issue highlighted by the Hughes report. Central to preventing future scandals is ending the culture of cover-up that has been exposed time and again by medical scandal inquiries—the culture that allowed Susan to be told her mesh had been removed when it had not, and Caroline to be gaslighted for six years by the very professionals who should have helped her—and the doubtful legal procedures outlined by my hon. Friend the Member for Chesham and Amersham. That is why we support the Public Office (Accountability) Bill—the Hillsborough law—which will enshrine a statutory duty of candour on all public authorities and provide bereaved families with equal legal representation at inquests. The collapse of the Bill at the eleventh hour was deeply disappointing. Ministers now need to listen to the Hillsborough families and urgently bring forward a solution that ensures that everyone, including the security services, is covered by this law. However, a duty of candour must go hand in hand with protection for brave individuals who speak up when they see harm being done. We strongly oppose the Government’s decision to scrap key patient safety organisations, including whistleblowing and speak-up programmes such as the National Guardian’s Office. We also oppose moves to remove patient voice, including the proposed abolition of local Healthwatch organisations. The sodium valproate and pelvic mesh scandals represent fundamental failures of our healthcare system to protect vulnerable women and children. It was a major failure of the previous Conservative Government not to deliver compensation, which was recommended by not only the Patient Safety Commissioner, but the Cumberlege review that preceded it. The Liberal Democrats have consistently called for every recommendation from the Cumberlege review to be accepted and for a full response to the Hughes report setting out how the Government will provide redress for these terrible injustices. Two years since the Hughes report is long enough to wait. Four years since Cumberlege is far too long. For women like Susan, who have been waiting since 2009 for justice, 16 years is unconscionable. Families deserve answers. Women deserve compensation and corrective surgery where appropriate. Children deserve the support and care they need. They all deserve justice. Everyone affected by the valproate and vaginal mesh scandals should have an apology, compensation, corrective surgery where needed, and psychological support. I ask the Minister again: what active conversations are currently being held with the Treasury about redress payments? I urge the Government to commit today to publishing a full response to the Hughes report, implementing its recommendations in full and ensuring that no family or individual affected by medical negligence ever has to fight this hard or this long for basic recognition of the harm that was done to them.