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Lord Lansley (Con)

Speaking in the House of Lords on 28 April 2026

Debate

UK Biobank Data

Contribution

My Lords, I declare an interest as a participant in UK Biobank. It is not the first time I have said that: when I was Secretary of State, I said it in the context of encouraging people to support UK Biobank. Does the Minister agree that, notwithstanding this lamentable abuse of the data, those of us who are participants see such value emerging from UK Biobank that we think we should happily continue to volunteer our data and our services whenever we are asked? However, it surprises me, as somebody who has received emails from UK Biobank, that since this was in the press I have received nothing, although it says that it is going to contact all participants and the Statement says so. I am surprised that eight days have gone by and nothing has emerged. The website of UK Biobank says—the noble Lord, Lord Clement-Jones, referred to it—that it intends to have what it describes as an automated data-checking scheme in place by the end of the year. Can the Minister kindly tell us a bit more? What would that add and why is it important? It seems to me that what we are looking for in this age of AI systems is something which not only prevents unauthorised access but is capable of identifying every subsequent use of that data wherever that data may have been provided under the licence.

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