Dr Scott Arthur

What an honour it is to follow my fellow Scot, the hon. Member for Mid Dunbartonshire (Susan Murray), on this topic. I thank my hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) for the way she introduced this debate. I think she said she was guided by experience, but I know she is also guided by the love she has for her sister. I thank her for securing the debate. She highlighted a real inequality at the heart of this matter—if she does not mind me saying so—as her sister was able to access the best treatment in Germany. Some people are able to pay a bit more or to run a Crowdfunder when they are faced with a brain tumour or another type of rare cancer; really, though, we should all have access to the same excellent treatment here in the UK. I will speak a little about my private Member’s Bill and a little about the treatment for people with brain tumours in Scotland. Every year, more than a thousand people in Scotland will be diagnosed with a brain tumour. That may not sound like a large number, but, as we have heard already, while survival rates for many other cancers have improved, the needle for brain tumours has barely moved at all. Only 15% of adults in Scotland diagnosed with a high-grade brain tumour will survive beyond five years. I know the weight of those numbers personally. My father-in-law was fit, active and full of life at the time of his diagnosis. It turned out that he had glioblastoma—the most aggressive form of brain tumour. He went from being a healthy man who enjoyed spending time with his grandchildren to having less than six months to live. As we have heard, that sudden, brutal trajectory is a story shared by far too many families. I always say that my father-in-law was a very dignified man, but the condition did not respect that at all in the impact it had on him and my wife’s family. My father-in-law inspired my private Member’s Bill, the Rare Cancers Bill, which we have heard about today. It starts Committee stage in the Lords on Wednesday—let us hope there are no amendments. I thank everyone who has helped me to get the Bill this far, particularly my hon. Friend the Member for Mitcham and Morden and her colleague Baroness Elliott, who is supporting us in the Lords very ably. I thank the Secretary of State for Health and Social Care for his support—my hon. Friend the Member for Mitcham and Morden arranged a meeting for us very early on. I also thank the Under-Secretaries of State for Health and Social Care, my hon. Friends the Members for West Lancashire (Ashley Dalton) and for Glasgow South West (Dr Ahmed), who is in the Chamber today and who has been a fantastic advocate from day one. Even the Opposition spokesperson, the hon. Member for Sleaford and North Hykeham (Dr Johnson), has been a fantastic supporter. I have to add my thanks to the hon. Member for Wokingham (Clive Jones)—I was going to call him Mr Cancer, but that does not sound like a great title. He is passionate about this and is widely respected across the sector. Of course, I also thank the hon. Member for Witney (Charlie Maynard). I have met his sister many times; she is—if I could put it this way—a very forthright person. When I first met her, at a reception for a cancer charity, she said that she was driven not through self-interest, but because as a mother, she wanted to spend longer with her children and to see them grown up. Who can argue with that? Lastly, I thank the many charities—more than 40—that have been supporting us. Of particular relevance to this debate is Brain Tumour Research and the Brain Tumour Charity. I also thank H/Advisors for the work it is doing in helping us to keep the campaign pointing in the right direction, which is not always easy, I have to say. Over the past year, I have been moved by the courage of so many people I have met, including Georgie. Through meeting both patients and families and through broader engagement with charities, clinicians and survivors, I have learned that there is no single easy solution to the problem that we face. I have been guilty of saying that nothing has been happening in the sector, but the reality is that a lot is happening—it just needs a push in the right direction, or, as some would say, a kick up the backside. I do not know if that is acceptable language, Madam Deputy Speaker. There are promising breakthroughs in development, particularly in genome testing and targeted therapies, and crucially there is now national momentum behind this. The newly announced national cancer plan allocates £13.7 million to the NIHR brain tumour research consortium; through this and other significant partnerships, we will accelerate the volume of high-quality, innovative brain tumour research taking place right across the UK. This is a promise that we all—including the Minister—have a duty to ensure is delivered. I hope that we debate this subject regularly and that we can be impressed at the progress our Government are making. Importantly, the plan recognises a long-standing problem in cancer research: too much early-stage discovery science never makes it through to translational research that delivers real diagnostics and treatments for patients. The commitment to link discovery scientists with translational researchers, to connect research infrastructure and to co-fund the Cancer Research UK brain tumour centres of excellence is exactly the kind of approach that this field has needed for many years. For Scotland to truly benefit from this progress, we must ensure that our systems are ready to plug in to this UK-wide effort. One of my constituents, Dr Faye Robertson, is a consultant clinical oncologist and honorary clinical senior lecturer at the University of Edinburgh. She is at the forefront of this fight as part of a team on a mission to deliver breakthrough treatments and pursue cures for thousands of patients and families facing devastating diagnoses each year. Faye’s team’s spin-out company Trogenix has secured £70 million of new finance to expand, upscale and develop. That sounds like a lot of money, but I understand that £70 million is just a drop in the ocean if real progress is to be made. They are doing fantastic work. Pre-clinical studies have shown that the biotech company’s breakthrough Odysseus platform could kill cancerous brain cells and stimulate the immune system against the tumours, while leaving the surrounding healthy cells and tissues untouched. This massive investment will accelerate Trogenix’s lead programme in glioblastoma multiforme, including a move to clinical trials. By chance, I was at a mosque just outside my constituency on Saturday evening welcoming children from Gaza into the UK and meeting some of the health workers who have been supporting them. Among them was a neurologist who knew about the Trogenix work, which, he said, has made breathtaking progress although there is still a long way to go. It is work like that which gives me hope. I met Faye in my office. She is hugely impressive, a fantastic communicator and a real intellect—if she is listening I have probably embarrassed her. I trust her when she says: “Whole-genome sequencing is changing the outlook for treatment of many cancers, unlocking the promises of precision treatment. Yet in Scotland, out patients are still waiting.” This is not a political point; it is just a matter of fact. I also spoke to Dr Sarah Kingdon, who is the Tessa Jowell neuro-oncology clinical fellow at the Beatson cancer centre in Glasgow and also at the Edinburgh cancer centre—these people always seem to have long titles—and she absolutely agreed that there is a real gap when it comes to Scotland being able to access treatment because of the lack of testing. The neurologist I met on Saturday said that he was sending samples way down to the south of England and would have to wait for those samples to return. It is completely unacceptable that we do not have ready access to this technology in Scotland. While other parts of the UK are moving toward routine whole-genome sequencing, Scottish patients face what has been described as a “genomic gap”. We have the scientific expertise—that is beyond doubt—and we have world-class infrastructure in Edinburgh. What we lack is a consistent policy commitment to make genomic testing a standard part of care. Without genomic testing, clinicians are fighting in the dark. We owe it to the families who have watched loved ones fade in a matter of months to ensure that Scotland is not just a place where research happens but one where research reaches the patient. The national cancer plan shows that momentum is building right across the UK, and I hope breakthroughs in brain tumour research will be with us soon. Let us ensure that Scotland is ready to be part of that future. I thank my hon. Friend the Member for Mitcham and Morden again for opening this debate and for the leadership she is showing. Very briefly, I want to highlight three fantastic campaigns, and then I have one ask of the Minister. The first campaign is Brain Cancer Justice, which Georgie is a part of. It advocates increased funding, research and support for brain cancer patients and families who are impacted by this deadly disease. I am sure that all Members here give those involved in the campaign our full support—otherwise I think they might be in the wrong debating Chamber. The second campaign is for Owain’s law, which aims to standardise the process for storing and using brain tumour tissues, as we heard from the hon. Member for Witney. Ellie, who runs the campaign, is a fantastic communicator—it is impossible to disagree with her, because she is so passionate. She held a reception last week with someone called Samantha—I cannot quite remember where in the north of England she was from. Like Ellie, she has lost her husband to a brain tumour. She is devastated because she still loves her husband and is bringing up their children. She was explaining her predicament to us, all the while clutching pictures of her husband. It is awful that women are coming into this place so desperate but still hanging on to the love that they have for their loved ones. We have to listen to these people and demand action. The last campaign I want to mention is for Hugh’s law. This is a campaign for paid leave and financial support for parents of critically ill children. Brain tumours are one of the biggest cancer types for children, so it really applies to this debate. I pay tribute to Brentford football club, which has already accepted the actions of this campaign. It has not waited for the Government to encourage companies or make it mandatory; it has just got on and done it because it is the right thing to do. I hope that others follow. I have one ask of the Minister. I met Cancer Research UK on Monday last week—a fantastic charity, despite the challenges it faces, which we heard about earlier. One of those challenges, its representatives explained to me, is that each year it spends £870,000 on visa costs to bring the best researchers into the UK to help in the fight against this awful condition and others. If life sciences are a key part of our economy, and if we want to tackle these cancers, perhaps colleagues elsewhere in Government might be encouraged to waive the visa costs for these fantastic researchers, and hopefully more will then follow them.