Contribution
I did mention the hon. Member’s constituency first, but I take your guidance, Mr Betts—my apologies for that.
I recently joined a meeting with the hon. Member and with charities including Breast Cancer Now, Breast Cancer Network Australia and Rethink Breast Cancer. Together those charities are working across the UK, Australia and Canada to improve metastatic breast cancer data and ensure that patients’ voices are heard. The message is clear: if we do not count people, we cannot support them. Collecting and publishing this data is essential, because people with metastatic breast cancer count.
Alongside better data, timely access to new treatments is critical. Secondary breast cancer may be incurable, but advances in medicine have transformed outcomes or many patients, giving them more time with the people they love. However, too many patients still struggle to access life-extending treatments on the NHS. One example is Enhertu, a treatment for people with HER2-low metastatic breast cancer. It has the potential to extend and improve lives, yet it was rejected for routine NHS use in England in 2024 on cost grounds. As a result, many patients have been unable to access the treatment that they need. Meanwhile, Enhertu is already available in 26 European countries, including Scotland. England is falling behind. Recent changes to the National Institute for Health and Care Excellence’s cost-effectiveness threshold provide an important opportunity to revisit that decision. I urge Daiichi Sankyo, AstraZeneca, NICE and NHS England to work together to reach an agreement so that patients can access and benefit from Enhertu.
More broadly, concerns remain about how NICE assesses medicines and about the impact on innovation and access to treatments, particularly following the introduction of the severity modifier in 2022. Even after recent changes, the threshold for approving some medicines for metastatic cancer remains lower than before 2022. NICE has estimated that the revisions may result in only three to five additional medicines being approved each year. It is the patients who pay the price. Life-extending treatments exist, but they are not always available to those who need them most. That cannot be right.
The commitments in the national cancer plan to streamline medicine approvals and accelerate clinical trials are welcome. The recent UK-US pharmaceutical agreements, including commitments to strengthen support for the life sciences sector, are likewise welcome, but without meaningful investment in innovative medicines for severe conditions, access will remain limited and patients will continue to miss opportunities for longer and better lives. Support services also remain inadequate.
Clinical nurse specialists play a vital role in guiding patients through complex treatment pathways and providing emotional support, yet many people with secondary breast cancer still do not have access to a clinical nurse specialist. Even among those who do, a quarter have not seen their specialist since diagnosis, and only 65% feel that their specialist has enough time for them. The reason is simple: caseloads are too high. We must recognise the profound emotional impact of secondary breast cancer. More than a quarter of patients say that they did not receive enough mental health support. Many need greater support for their family as well. The NHS long-term plan promised every cancer patient access to a clinical nurse specialist or support worker. That commitment must now be delivered for people with secondary breast cancer who need specialist expertise to navigate this complex disease.
People living with metastatic breast cancer do not have time to wait. They need to be counted. They need access to the support they deserve. They need rapid access to treatments that can give them more precious time with the people they love. I ask the Minister for two clear commitments. First, will she set out a timeline for delivering the national cancer plan’s commitment to define and count recurrent cancers, starting with metastatic breast cancer in 2026, and will she outline any plans to make the data that is currently held by the national disease registration service publicly available? Secondly, what are the Government doing to support metastatic breast cancer patients who may miss out on life-extending medicines because of pricing and access barriers?