Charlie Maynard

It is a pleasure to serve under your chairship, Mrs Barker. I thank the hon. Member for Colne Valley (Paul Davies) for speaking on behalf of the petitioners, and I thank the petitioners, who are in the Public Gallery today, for all the work they have done. A particular shout out goes to Sarah—I am thinking of Jess. The issue is not rare. In my constituency alone, Claire in Appleton lost her husband, William, while Stevie in Appleton lost her dad Bubba a month ago tomorrow. In Farmoor, Cumnor and Besselsleigh, three people are fighting for their lives, including my sister, Georgie. Her courage and determination has been fantastic. I want to focus on a few things. First, I want to advocate for flash frozen tissue nationally, on a mandatory basis. The genetic code in those tumours is the key to solving that cancer and fighting it. At the moment, we are taking a lot of those tumours out and putting them in the bin. That is killing people. If we had a mandatory focus on that at scale, it would be more possible economically, in addition to our moral duty to keep everybody alive for much longer. We should try to push towards that, so that we have whole-genome sequencing of those tumours. That is key to making the UK a leader, and it would drive a lot of research funds into the UK. I ask the Minister to consider that. I have another request for the Minister. There is no single accountable lead for brain cancer now. Thanks to the hon. Member for Edinburgh South West (Dr Arthur), the Rare Cancers Act 2026 introduced a lead, which is equivalent to 0.1 full-time employee. The national cancer plan has put £5,000 towards a lead. Getting a rare cancer lead who is full time and fully accountable would be a great help.