James Naish

James Naish

Labour — Rushcliffe

Speaking in the House of Commons on 22 June 2026

Debate

Spinal Muscular Atrophy: Newborn Screening Test

Contribution

A couple of my constituents with direct experience of SMA got in touch with me. The thing that they identified as being most difficult about the current arrangements with the in-service evaluation is the lack of detail about how long it will take. Does the hon. Lady agree that if the Minister could provide a level of clarity about the length of time that the ISE will run, that might give us the sense that there is forward momentum on this issue?

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