Contribution
I am sure that hon. Members from across the House would agree with the hon. Lady’s sentiments.
On the estate claims, what has just been explained cannot be right, as the right hon. Member—sorry, I am promoting the hon. Gentleman—[Interruption.] Sorry! The right hon. Member for New Forest East set that out. Will the Minister be able to announce a change of approach for the families who have already suffered so much, so that they are not penalised because of the date when their relative died?
Carer’s contributions still are not properly recognised in the way they should be. Many family members provided unpaid care for many years, putting their lives and careers on hold, as has already been mentioned. This is especially stark for children and young people who took on caring responsibilities that went far beyond what would normally be expected, often at real cost to their education, wellbeing and future prospects. The supplementary compensation route should be amended to recognise both the financial and personal losses of carers, as well as recognising the additional impact caring duties have placed on children.
To his credit, the Paymaster General has engaged with the community, parliamentarians and advocates. I know he will listen closely today, and I hope that there may be further changes before the next regulations are introduced. I hope that the latest proposals are not the last word and that we will ultimately have a scheme that is free from the clear inequities that I have already described.
The other top priority now must be for compensation to be delivered faster. We need to focus on delivery and accountability. Too many people are still waiting, and the system is not moving fast enough. Many people are wondering how long it will take for their cases to be considered if this pace remains the same. The scheme made some initial progress, but it now feels as if it has slighted stalled.
Most of the progress IBCA has made is among the most straightforward category of claims—living infected people who are already on a support scheme. We also need to see faster progress across all remaining categories of claims, including infected people who were never previously compensated, affected people and estate claims. A lot of those cases should be relatively straightforward, for example with many estate claims where probate is already in place and interim payments have been made. There is strong argument for prioritising those so families can get closure sooner. There is also a growing concern that IBCA’s test-and-learn approach is not working and is not delivering speed or fairness. Would it not be in most people’s best interests to deal with these straightforward cases rapidly so that thousands of people get closure and can move on with their lives?
The haemophilia centres do fantastic work, but ongoing operational problems in the regulations are causing avoidable delays and placing additional burdens on them. Clinicians and haemophilia centres are under real pressure as a result. Many are being asked for historical records that no longer exist, and the administrative burden of finding evidence and responding to IBCA is falling on already-stretched NHS teams. There are cases where centre staff, whose primary focus should be on the treatment and care of people with bleeding disorders, are working every weekend to keep on top of compensation administration.
It is important to note that haemophilia care is already facing challenges. The most recent peer review found major gaps, with 93% of haemophilia centres staffed below the target standard. Compensation claim admin should be properly resourced and funded through IBCA, rather than relying on haemophilia clinicians to pick up the slack. I hope that will be accepted by the Paymaster General.
Finally, will the Paymaster General clarify a point about regulation 12, regarding the switching of payments? Sean Cavens, a great campaigner who has suffered greatly as a result of this tragedy, thought it was possible to switch his payments. He is asking that if an individual is on yearly support payments, which were previously guaranteed for life, they can switch it to take a lump sum payment.
To clarify, Sean believed there would be an appropriate lump sum payment. However, he is 45 years of age. If he commuted his support payments to a lump sum payment, it would represent only four years of support payments. When was that changed? Surely it cannot be right that if somebody wants to transfer their support payments, basically forget about the situation and move on, they are not allowed more than four years of support payments as a lump sum.