Dame Nia Griffith

I thank my hon. Friend the Member for Eltham and Chislehurst (Clive Efford) for his excellent work, and for securing another debate on this issue—an opportunity for us to speak up for our constituents and express our continued frustration at the pace and disparities of the roll-out of the compensation scheme. I pay a huge tribute to all those who have campaigned tirelessly for so many long years, and to my right hon. Friend the Member for Kingston upon Hull North and Cottingham (Dame Diana Johnson) for her sterling work. Before I turn to concerns about the scheme, I want to take a moment to remind us of what an appalling scandal the infected blood scandal has been. It has absolutely ruined lives and destroyed families. It is appalling enough that people were infected in the first place, leaving them with lifelong health problems, and having a devastating impact on them and their families—but of course, that was compounded by the fact that they, and their families, were not told the truth; by the continued use of products after their risks had become known; by medical records going missing; by cover-ups, obfuscation and the deliberate withholding of information; by the stigma that surrounded HIV; by the limited treatments available; and by the endless delays in getting to where we are today. Hopes were raised, only to be dashed again. There was anticipation, expectation, and then disappointment. People have been waiting years and years for compensation. Many of the infected and affected have passed away before seeing any redress, but many are still waiting, wondering if they will get redress in their lifetime. I turn to some specific issues and cases. I will mention three of my constituents, but we only get a tiny glimpse into their life; we can never know the anguish that they and their families have endured, the obstacles they have encountered, the continual battles they have had to fight just to live their life, or the injustice, anger and despair that they have felt. So often, we have felt inadequate as MPs; there was so little that we could do. Like them, we were waiting. The mother of one of my constituents is 98 years old. She was only 52 when her son was infected; she has had to see him suffer, and she has cared for him. It has been 46 years, and she still has not received any redress or compensation. Let us remind ourselves of the trauma that mothers like her have lived through, seeing their children suffer and looking after them. I had understood that the older members of the affected community were to be prioritised, but just how old do you have to be? Is 98 not old enough to be a priority? Of course, any redress or compensation is totally inadequate in the light of what has happened, and can never make up for what the infected and their families have been through, but my constituent’s mother at least deserves recognition in her lifetime. They have still had no redress and no recognition, and the worry is that they may not even live to see it. I appreciate the arguments about getting the scheme right and learning the lessons from small numbers, but now really is the time to ramp up and speed up the roll-out of the compensation. Another of my constituents was infected very young. Again, we can never know the anguish he and his family suffered, but because of his age, there was never any proper accounting for his earning potential—any recognition of what he would have achieved if his childhood had not been dominated and ruined by the very serious consequences of his infection. He quite rightly feels that it has all been too little, too late, and that the payments do not reflect what he has been through. Again, his family—his mother, his sister and his children—are still waiting, and no one is getting any younger. His case, as the person infected, is all documented, so surely it should not be difficult to deal with the family members who have been affected as a result of his being infected. Then there is the family of Damian Lewis, who was infected with HIV in 1983 as the result of bone marrow treatment in a London hospital, and who subsequently developed AIDS and died in 1995, when he was just 19 years old. To compound matters, this was another case in which the parents, Brian and Joan, were not told straightaway what had really happened, and only found out the truth later. The impact of Damian’s infection on him and the family was devastating; his surviving twin brother tells how his parents never got over it. They had their lives destroyed by losing Damian. His mother Joan passed away in 2021—all those long years after Damian was infected—having seen only the first three years of the inquiry. She sacrificed her career as a nursing midwifery manager to look after him in his final years. Even after so many years, Damian’s family have never had redress or an apology. They never saw matters resolved, and as Joan passed away in 2021, her estate will never be eligible for any compensation, because claims can be made by estates only when the affected person dies between 20 May 2024 and 30 May 2031. That just seems so unfair, unjustifiable and morally wrong, particularly as there have been so many delays. Even now, the pace at which the affected are being dealt with is glacial. Like so many others, Damian’s surviving twin is shocked at the disparity between the living infected and the infected who have passed away, who never received answers or redress. There are also disparities in the ways that the various family members are treated; there are substantial differences in the treatment of partners, parents, children and siblings, despite family members experiencing the same events and witnessing the same injury, suffering and injustice. He would like answers on these issues. Of course, while delays continue, those still waiting for payments see the worth of their entitlement eroded by inflation, and are missing out on the opportunity to earn interest on their money. I turn to the current situation. We all appreciate that my right hon. Friend the Minister has worked hard on this issue, and has secured £11 billion in funding for the scheme. He is the latest in a long line of Ministers dealing with this, and many of the delays happened before he was appointed, but nevertheless, he is the one who now has the power to expedite matters. The cry from everyone is: can we please speed up the process of payments? Can we avoid all the duplication, going back over records, and imposing unnecessary work on clinical staff? Some of the dates set out by the Infected Blood Compensation Authority feel light years away. It is not just that those affected are missing out financially; there is the psychological trauma of yet more delays, and the fact that they still cannot get closure. The infected, too, do not want to be forever simply getting the payments under their current scheme. They want the option of a lump sum—but above all, they want closure. The affected also want proper redress and recognition of all that they have been through. Sir Brian Langstaff repeatedly made it clear that the affected should be able to make an application themselves, and should not have to wait to be invited to do so. Many of those involved have the documentation ready, and so much time, effort and cost could be saved by allowing them to make an application. Haemophilia Wales has assessed that it would be far simpler, and would save the Cabinet Office a lot of work, if those wishing to claim could put in their forms and get the necessary evidence together with the help of their lawyers, many of whom have been involved for many years. Instead, I understand that very well-meaning caseworkers who are new to the issues are having to ask for additional copies of documents, and are giving clinicians additional work. They are duplicating what has already been done, when many of those who have been waiting for compensation for many, many years have all that information ready. Will the Minister look seriously at this suggestion? I understand that the legislation will include a supplementary route for those affected, which will give a 50% uplift. That recognises the unique and lasting impact on children and siblings affected while under the age of 18, bereaved parents whose infected child died under the age of 18, and bereaved partners. Can the Minister give us a timescale for that? To conclude, what will the Minister do to speed up the roll-out of the payments to all those infected and affected? None of us should rest until every person infected or affected receives their entitlement.