Contribution
I thank my hon. Friend the Member for Eltham and Chislehurst (Clive Efford), my constituency neighbour, for securing the debate and speaking with such clarity, and so powerfully, in his opening address. I was contacted by my constituent Susan and her two daughters, including Louise, who I welcome to the Gallery today; they asked me to take part in this debate. I pay tribute to them for their fight and for bravely sharing their story with me. I will come to that story in a moment.
As has been said, the infected blood scandal is widely recognised as the worst treatment disaster in the history of the NHS. More than 25,000 people were infected with hepatitis C and, particularly tragically, more than 380 children were infected with HIV. I vividly remember meeting some of those impacted at an event with the phenomenal and unrelenting Hillsborough law coalition. A Hillsborough law is an important part of this debate, because this situation went from a tragedy to a scandal because of the way that patients and families were treated.
As I have said previously, all the campaigners and campaigns supporting the Hillsborough law are distinct. I got involved in the campaign for the Hillsborough law because I am a relative of Hugh Mullan, who was one of the victims of the Ballymurphy massacre, which was one of the worst atrocities of the troubles. He was shot in the abdomen and again in the back as he lay on the ground, giving the last rites to someone. I have watched my dad’s family fight for 50 years for truth and justice to be put on the record, and to be told that he was entirely innocent.
I have got to know many of the other campaigns involved: Margaret Aspinall and the Hillsborough families, the Grenfell families, those related to the Post Office Horizon campaign, and many others who are part of this coalition. Although they are distinct and come from different contexts, places and times, there are often many similarities in what happens to them. First, victims are dismissed, information is withheld from them and they are sometimes smeared. Secondly, the authorities close ranks, shutting off routes to justice—we have heard many of those stories from Members across the House. Thirdly, victims face a legal system in which the scales of justice are stacked in favour of the state. Justice for one of those campaigns requires justice for all. The Hillsborough law must be passed in full if we are to deliver that.
I echo the comments made by hon. Members across the House about learning from these injustices—we need to stop trying to recreate the wheel. We must learn from the processes around these scandals and the inquiries that take place; bringing that together with the Hillsborough law is a really important step.
I turn to my constituent Susan and her husband George. Let me tell the House what happened to George. George suffered from severe haemophilia A and type 1 diabetes, and died suddenly on 26 April 1978 at the age of just 33. It was only 41 years later, when the family were able to obtain his medical records in 2019 on hearing about the infected blood inquiry being set up, that they discovered he had been given factor VIII products for various operations at St Thomas’ hospital from 1976 onwards, including a product called Hemofil in January 1978. The records also show that he was regularly tested for hepatitis B antigens and that the test results were negative until October 1976—just six months after he was first treated with factor VIII.
George died in 1978 before hepatitis C had even been identified—no tests were available. The inquiry concluded, though, that essentially any haemophiliac given blood products in the 1970s would have been infected with hepatitis C. Susan, his wife, gave evidence to the infected blood inquiry in March 2020 with assistance and contributions from her daughters. They expressed their belief that infected blood products may have contributed to George’s death, in particular through his ability to respond to insulin for his diabetes.
Susan has just been informed by IBCA that it is ready to begin her claim. That is really positive, welcome news, especially as she is 80 and not in the best of health. Many hon. Members have mentioned that time is not on the side of victims and families and that an expedient process is really important. Susan has been told that she will be one of the first people to make a deceased infected person claim, and that her experience will help to improve the service for people who claim in the future.
However, Susan’s daughters and doubtless thousands of others affected by the scandal would like more information on when the further claims will be processed. They fully understand that those who are elderly or ill take priority and that IBCA can bring only small numbers of affected people into the scheme for now, but they would hugely value a more detailed timeline for when affected people’s claims will be addressed, even if that means distinguishing between months and years. I have also heard from other victims and victims’ families about the waiting. As Sir Brian Langstaff, the inquiry’s chair, stated in his address at the recent infected blood memorial service, people need greater transparency. I would welcome the Minister’s response to that.
Susan’s husband George was given products that the Government knew were not safe. His family were never made aware at any time that that was happening, nor that he was being tested for hepatitis. Reading about George’s experience and that of his family, and listening to the contributions made by hon. Members across the House, brings genuine anger. The state must ensure now that it does not fail victims and families again and that we make quick progress on this.
Susan had to wait over 40 years to find out the truth about her husband’s death, but she and thousands of others have still not been given closure. As the Haemophilia Society has laid out, first, psychological harm must be fairly and compassionately recognised. Secondly, the scheme must ensure that compensation to estates reflects the harm and loss suffered and removes the clear injustice of penalising those who died earlier. Thirdly, compensation must begin to be paid faster. Beyond that, as George’s daughter Louise, who is sat in the Gallery, said:
“A compensation payment is hugely significant not just for its monetary value, but as an acknowledgement that an injustice has been done, too”.
We talk about compensation, which is one component of redress. I have just spent the past year on Philomena’s law—I am proud to have brought it in—which has delivered justice for victims and survivors of Ireland’s cruel mother and baby homes, 13,000 of whom live in Britain today. I have met countless survivors, and what they say is that nothing can undo the wrongs done to them, but compensation is one important component of redress. The House will not deliver closure for those families until it is paid. A swift resolution to the compensation issue would help many like Susan to find some kind of ending to a very difficult process. The importance of acknowledgement of injustice and wrongdoing is a sentiment I hear echoed across much of the Hillsborough law coalition.
Time and again, we have seen the state engaged in David versus Goliath battles in which the state, flanked by an army of lawyers, takes on families who have scraped together enough for a single barrister. The state closes ranks and opportunities for justice are snuffed out. Even when there are admissions of guilt and wrongdoing, such as with the infected blood scandal, too often we see hesitation to implement the recommendations of public inquiries. As the Haemophilia Society also says, the Hillsborough law must be enacted in full, introducing a duty of candour for public officials to ensure that such scandals can never happen again. The Hillsborough law will also introduce a national oversight mechanism so that Governments are held to account in implementing the recommendations of public inquiries like that into infected blood.
We must deliver justice for those impacted by the infected blood scandal—we know that, for many, we do not have long to do so. We must also do all that we can to ensure that no scandal like what happened to George and his family can happen again. I have faith that the Government want to do that. I thank again my hon. Friend the Member for Eltham and Chislehurst for securing the debate. While I urge the Government as a whole to go faster, I thank the Minister personally for all the tireless work he does on this issue.