Wendy Chamberlain

Thank you, Madam Deputy Speaker, for your very kind remarks about Albie and others in today’s debate. A number of themes have been discussed by the hon. and right hon. Members, and I have always found that the number of MPs who join the PANS PANDAS all-party parliamentary groups increases over the term of the Parliament, because they get involved through casework. Hearing from the hon. Member for Carlisle (Ms Minns), and from my hon. Friends the Members for Henley and Thame (Freddie van Mierlo) and for Mid Dunbartonshire (Susan Murray), about their constituents’ experiences brought that to light. I commend the shadow Minister, the hon. Member for Solihull West and Shirley (Dr Shastri-Hurst), for his debut at the Dispatch Box. Both he and the Minister talked about the intersection that PANS/PANDAS, their diagnosis and symptoms represent. What families are finding challenging is that that intersection has not been properly recognised, and children often end up going down a mental health pathway, where they are left in limbo for far too long. We often talk about the pressure on mental health services and young people, but if we could diagnose PANS/PANDAS sooner, we would potentially not set off children down that pathway. I want to mention young people and their families. The challenge that is presented has been well illustrated, and I hope that those in the Gallery, and those watching online, feel seen and heard following both today’s debate and the recent youth board. In the last Parliament, I passed a private Member’s Bill that gives people the right to carer’s leave. When I was doing that work, we spoke to carers who talked about feeling guilty that the administration involved in being carers prevented them from actually being able to care. In relation to PANS/PANDAS, that comes through very strongly. We clearly need to do a whole lot more to build awareness. My husband and I were watching the film “I Swear” a few weeks ago—if any Members have not seen it, I highly recommend it. My husband turned to me at the point when John Davidson, who is depicted in the film, attempted to kill himself as a young person who was starting to deal with his Tourette’s. My husband said, “Do you think PANS might have caused his condition, given the way that it came on and was described in the film?” That might just be the case. How many conditions or symptoms that we see could be down to PANS/PANDAS? As the right hon. Member for New Forest East (Sir Julian Lewis) said consistently during the debate, early treatment and testing via the use of antibiotics might just be the way to prevent some of the more serious symptoms. I have been encouraged by what I have heard from the Minister today, and I look forward to engaging with her and supporting her engagement with the Scottish Government. I thank everybody for being here on such a warm day and for taking the time to contribute. Question put and agreed to. Resolved, That this House has considered the diagnosis and treatment of Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS).