Michelle Welsh

I absolutely agree. Too often, the financial impacts of a cancer diagnosis are forgotten. People think about the hospital visits, the sickness and the endless tablets, but a disability or serious condition such as cancer has an impact on every single part of someone’s life. Following a diagnosis, families immediately have to deal with the financial impact. It is a sad fact of life that bills do not care whether a child has cancer; they will still be due. But we can care. Cross-party, we can care. We can unite and do the right thing. Families with children with a disability or serious condition have to wait seven months on average before receiving a single disability living allowance payment. That is months and months of rent, mortgage payments, electricity bills and council tax, and it is weeks and weeks of food shopping. It is compounded by the fact that household income drops by an average of £6,000 per year. For one in three, that can reach over £10,000. Sadly, it gets even worse: the delay in receiving DLA means that a parent’s ability to claim any carer’s allowance as an additional or an alternative has a further impact on the financial strain. It is also important to note that parents in work are unable to apply for universal credit, and that that cuts out other potential streams of support. All this leaves parents with an impossible choice, a cruel choice that no parent should have to make: do they leave their child alone in hospital to face this battle by themselves, or do they not go to work? Do they skip bills? Do they run the risk of losing their home? Do they not eat? Do they turn the heating off? This is the reality. These are decisions that families should never have to make, yet they happen daily for families up and down this country. During my meeting with Rachael, she told me about a young boy of just six years old who was also on the ward. His parents were left with no option but to carry on working. As the nurses were unable to provide round-the-clock care, Rachael helped him to use the toilet, helped to dress him and helped him to eat. It is heartbreaking to think of the many children who have no one beside them—not just for the children, but for the mothers and fathers being left with no choice. I missed my son’s first day back at school today and have cried about it, but that is nothing in comparison with having to leave a child who is suffering from cancer in a hospital bed. Let me be clear: DLA is not designed to act as a source of income. It is there to help with the extra costs of looking after a child with a health condition.