Chris Hinchliff

I am sure that many Members from across the House are aware of the campaign in memory of Hugh Menai-Davis, the son of my constituents Ceri and Frances who tragically passed away at the age of just six. As part of that campaign, the amendments that I have tabled to the Bill are designed to support families at the most difficult time imaginable. Our national health service and welfare state have changed and evolved over almost a century, and we should always keep a close watch on how faithfully they remain connected to their founding principles. Support “from the cradle to the grave” should not a dusty slogan; it must be a constant aspiration. Wherever gaps or shortcoming are identified, we must address them. It should concern us all that support for parents of seriously ill children is one such gap. When a child becomes seriously ill, the NHS mobilises around the child, quite rightly, but parents must mobilise around everything else—getting to work and hospital appointments, looking after other children, managing existing caring responsibilities, and somehow keeping on top of bills, rent or mortgages that do not stop when a child becomes ill. When all of this takes place alongside the fear that their child may die, the pressure on families is near impossible to bear.