Member

There is hardly anything more important in this Bill than the determination of prognosis. Naturally, prognosis will be highly dependent on the treatment received. Disease-modifying treatments will be highly significant. Prognosis will vary greatly depending on whether the person receives no treatment, poor or inadequate treatment, or indeed best practice. Take my own condition, spinal muscular atrophy. I have been given different prognoses over the years, depending on the hospital and attending doctors. When I was admitted to my local hospital with a chest infection, the senior consultant in intensive care informed my husband that it would not be in my best interest, or even fair, to treat me as I was at the end of life. That was over 10 years ago—and here I am.