Tim Farron

Tim Farron

Liberal Democrat — Westmorland and Lonsdale

Speaking in the House of Commons on 20 October 2026

Debate

Topical Questions

Contribution

The only way that children can be tested for metachromatic leukodystrophy and given lifesaving treatment is if their older sibling is diagnosed, at which point it is too late to save the older sibling’s life. That was the case for my constituent Nicola, whose daughter was diagnosed when she was already symptomatic. She died at the age of 13. Nicola’s younger son was able to be diagnosed and treated only because of his late sister’s illness. This cruel tragedy could have been avoided if the Government added MLD to the infant heel prick test. When will the Secretary of State do that? Will she meet MLD families and me so that she can hear from them at first hand about the desperate need for this change?

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