Alistair Strathern

Alistair Strathern

Labour — Hitchin

Speaking in the House of Commons on 26 March 2026

Debate

Ehlers-Danlos Syndrome and Craniocervical Instability

Contribution

I congratulate my hon. Friend on securing this debate on a topic that, like him, I must confess I had not heard much about until I spoke to two of my constituents about it. Having heard from Sarah and Mark, who both suffer from craniocervical instability, I know that it is impossible for those suffering from it not to be left devastated by its impact. It not only limits and narrows their lives and what they can do, but crushes their family finances, as they are forced to seek expensive private treatment due to inadequate access to treatment via the NHS. Does my hon. Friend agree that it is really important to put that right and that we should start to consider what a better clinical pathway for this condition might look like, so that everyone suffering from it can access the treatment they deserve in their community?

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