Josh Newbury

Josh Newbury

Labour — Cannock Chase

Speaking in the House of Commons on 26 March 2026

Debate

Ehlers-Danlos Syndrome and Craniocervical Instability

Contribution

One thing that we have come across consistently is that a huge amount of research has been done internationally and, as many hon. Members have outlined, constituents are funding themselves to go abroad for treatment and surgery. As part of that work with the NIHR, would the Minister be willing to look at international best practice in this area, so that we can draw on the experiences of many other countries as they work out how best to treat this group of patients?

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