Andy MacNae

Yes, of course I agree, and I am coming on to the research. We simply owe families answers and our best efforts to find those answers. As I was saying, we know that research and awareness raising, backed up by national leadership, can make a profound difference, as it has in other areas. When priorities are clear, progress does follow. For example, research and safer sleep campaigns have significantly reduced unexplained infant deaths—known as sudden infant death syndrome, formerly cot death. About 200 babies die from SIDS each year compared with 40 older children from SUDC, yet there has been 100 times more research into SIDS than SUDC, which receives only a fraction of the attention. Peter Fleming CBE, the clinical lead for the SIDS Back to Sleep campaign and a scientific adviser to SUDC UK, has said: “Research into unexpected deaths in infancy has led to an 80% reduction in such deaths over the past 30 years in the UK. Unexpected deaths in older children are less common, much less well understood, and to date little research has been conducted in the UK to try to understand or prevent such deaths… I am convinced that with the right research we will soon be able to prevent many deaths” of older children. The families here today are not asking for guarantees—they understand that science takes time—but simply asking for this issue to be treated with the urgency it deserves.