Jim Shannon

It is always a pleasure to serve under your chairship, Sir Jeremy. I want to say a big thank you to the hon. Member for Altrincham and Sale West (Mr Rand) for setting the scene so very well. He obviously has the necessary compassion and understanding. We recognise the pain that he referred to, which is suffered by many across the whole of the United Kingdom. I am my party’s health spokesperson, so these issues are important to me. The lasting mental impact of a diagnosis of a terminal illness must never be underestimated. Definitions can differ, but have more or less the same meaning. Terminal illness is defined as a progressive, incurable disease not expected to be cured, where medical opinion is that death can reasonably be expected within roughly a year. I know there are exceptions. Some people live for six weeks and some for six years after getting a diagnosis. When someone is given a terminal illness diagnosis, they right away look at their whole life and those around them. I cannot imagine the feeling of being told that news and where the mind must go to. The reality is much more frightening than the thought. A study by Marie Curie found that nine in 10 frontline staff supporting dying patients reported that patients were lonely—I think that was referred to earlier. A similarly high proportion report loneliness among end-of-life carers. The same report shows that loneliness at the end of life is strongly linked to worse physical health and mental ill health. I remember a couple of occasions when I had to go and see people I knew who had been given a terminal illness diagnosis. One lady came back from holiday and was not feeling her best, so she went to see the doctor. The doctor told her she had liver cancer, and that lady did not last six weeks. I pay tribute to all the charities that do great work, Marie Curie in particular. The people are so compassionate, understanding and loving, and are always there when people need them most. Queen’s University Belfast in Northern Ireland stated that there are high levels of death illiteracy in Northern Ireland, meaning that those diagnosed with a terminal illness often have a true lack of understanding about how to access end-of-life and bereavement support, because they are so consumed—I am speaking in a generic way—by what is happening in their life and around them. This can be deeply worrying in terms of the mental turmoil of individuals and the people caring for them in their darkest times. There is a belief in taking the pressure off and knowing what the next steps are. More work must be undertaken to ensure there are no barriers to accessing care and to ensure people are aware of their options for end-of-life and palliative care. There is no doubt whatsoever that restricting such information will worsen mental health symptoms. That is the nature of life. A person of faith will realise they are only here for a short time and they are going to a better place. For those who do not have faith, perhaps the Minister could suggest that people with a terminal diagnosis could talk to faith ministers for advice and succour. We must also, I believe, do everything to empower patients and their families. It is not just the person who has been diagnosed with the terminal illness who is travelling on that path; the whole family is travelling with them, and they suffer, because their lives focus on what is happening as well. We must ensure that they receive the best care and access all available support, not only from our wider healthcare trusts, but from the communities in which they live. I will conclude, as I am conscious of the time and of others wanting to speak. If we are serious about compassion and genuine care, we must be serious about better mental health support for those living with terminal illnesses. Whether someone has faced advanced cancer, motor neurone disease, heart failure or chronic respiratory illness, they deserve more than medication and medical charts; they deserve the highest emotional support and compassion and a reassurance that they are not alone. I look forward to seeing what more we can do to be better. I look forward very much to the response, from a Minister who understands the issues and who can give us the succour and support that we need.