Tessa Munt

I beg to move, That this House has considered Government support for people with myalgic encephalomyelitis. It is a pleasure to serve under your chairship, Mr Mundell. Myalgic encephalomyelitis is a complex, chronic condition affecting multiple body systems. There is currently no cure or established treatment. The symptoms of ME go far beyond chronic fatigue or being very tired; the sickest patients lie alone in darkened rooms, sometimes unable to move or to speak—or, in the very worst cases, to swallow or to digest food. Even at the mildest end of this condition, people with ME who once had lives, hopes and dreams for the future live a shadow of their former lives. More than five years on from the start of the covid pandemic, it is timely to note how the numbers affected have increased. Approximately half of those with long covid go on to meet the diagnostic criteria for ME, so it is now estimated that 1.35 million people live with ME or ME-like symptoms. That includes healthcare workers, teachers and other key workers who kept our country running at the height of the pandemic. Add in carers, and even more are directly affected. Importantly, there is a gendered dimension, with women five times more likely than men to develop ME. Despite the devastating toll of the condition, people with ME have endured decades of substandard and sometimes downright unsafe healthcare, with pitifully little funding for research. In spite of the lack of robust evidence to this effect, ME is treated as though the condition is psychiatric.