Sir Jeremy Hunt

It is a privilege to speak under your chairship, Mr Mundell. I thank the hon. Member for Wells and Mendip Hills (Tessa Munt) for calling this debate. I would like to use my short time to tell the story of a young man who made me understand the tragedy of ME six years ago. He was a very promising first-year student at Durham University called Tom. He was on track to get a first in maths. He was a big hockey player, but in his second year, he started struggling, first to walk upstairs and to climb hills, and eventually he found that he could not wash himself, eat by himself or even read. Then, to his enormous frustration, he dropped out in his third year. When all his friends were starting a new life with their first job, he had to stay at home and go through the nightmare of first trying to get a diagnosis and get someone to agree that he had a problem, and then trying to get treatment for it. Tom felt that he was going in circles: doctors were not really persuaded and he was not getting any answers. He was very lucky because he had two remarkable parents, Alex and Denise, who could afford to go to America. In fact, they moved to America and they got him enrolled on clinical trials. This story has a positive ending, because six years on, he is doing incredibly well. He is actually thriving; he has a job and a partner, and his life is back on track—except, sadly, in America rather than here. As the hon. Member for Wells and Mendip Hills said, there are 400,000 people with ME or with long covid symptoms that are like severe ME. For some of them, it is already too late. Maeve Boothby O’Neill and Sarah Lewis tragically lost their lives, and coroners issued prevention of future deaths notices.