Dr Zubir Ahmed

It is a very positive development that a number of integrated health boards in the midlands, the north-west, the north-east and Yorkshire have carried out detailed appraisals to identify any weaknesses in their services. My hon. Friend the Member for Lichfield raises an important point about how we can go further, including how annual health checks can significantly reduce the chance of premature death in people with a learning disability who have epilepsy. NHS England has developed a quality framework to set expectations for annual health checks for people with a learning disability and accompanying health action plans, which are vital to identifying needs early, providing the right support and mitigating the risk of sudden death. The National Institute for Health and Care Excellence guidance on epilepsies in children, young people and adults recommends that people with a learning disability should have monitoring reviews at least annually. The NICE guidance on epilepsies also includes a number of recommendations on how information should be tailored and adapted for patients with epilepsy who have a learning disability. It sets out that patients with a learning disability should have access to specialist care and should receive co-ordinated care using a multidisciplinary approach. For young people with a learning disability who are transitioning to adult epilepsy services, transition planning should begin early. This Government expect commissioners and service providers to take NICE guidelines fully into account when making decisions about how to best meet the needs of their local communities. We are rolling out mandatory training on learning disability and autism to health and adult social care staff. Support for people with a learning disability is also a key area of focus for the NHS RightCare epilepsy toolkit. The toolkit includes a number of actions that systems should take to support people with epilepsy who have a learning disability, such as ensuring that specialist epilepsy services are upskilled and make reasonable adjustments to support the needs of people with a learning disability, including working in partnership with staff trained in how to manage learning disability. The toolkit also sets out that services should ensure that community specialist nurses in learning disabilities have the right training in the management of epilepsy. I recognise the important work of organisations such as Epilepsy Action and SUDEP Action. Epilepsy Action has produced the “Step Together” toolkit, which describes what good-quality integrated services for people with a learning disability and epilepsy should look like. SUDEP Action has developed an epilepsy self-monitoring app, which is a digital tool designed to help patients understand their own personal risk of seizures and to track that risk. SUDEP Action has played a key role in the development of the Clive Treacey safety checklist. Once again, I thank my hon. Friend the Member for Lichfield for securing this important debate, and I thank the hon. Member for Strangford (Jim Shannon) for his contribution. It goes without saying that Clive’s death must not be in vain and that we must learn the lessons to ensure that this does not happen again. I believe we also need to commit further that no longer in our national health service should a tragedy be the only way to make things better for the patients and citizens we serve and to save their lives. Finally, the patient voice must be our guiding star when designing services and safety checklists and keeping patients safe in the community and in hospital. I believe that through the actions we have taken in our 10-year health plan and the actions that I have taken as the Minister responsible for patient safety, we can undertake today to Members of this House that that shall be the case going forward in this Government’s approach to patient safety. Question put and agreed to.