Mr Jonathan Brash

Mr Jonathan Brash

Labour — Hartlepool

Speaking in the House of Commons on 5 November 2025

Debate

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Contribution

Q3. My constituent Georgia Hart was just 15 years old when she was diagnosed with Friedreich’s ataxia, a cruel and degenerative condition that slowly robs a person of their mobility and independence. Since then, her courageous parents have battled day in and day out to raise awareness and money to get her the treatment she needs. There is now a drug, omaveloxolone, which has been proven to slow the progression of the disease, yet despite that it has been stalled by the National Institute for Health and Care Excellence, partly because the number of patients affected is judged to be above the limit for ultra-rare conditions.Georgia and those like her are being failed not because the science is not there and not because the treatment is not there but simply because the numbers do not add up. Does the Deputy Prime Minister agree that we cannot allow bureaucracy to stand in the way of life-changing treatment? Will he commit to ensuring that I, along with Ataxia UK, can meet the relevant Minister at the earliest opportunity so that Georgia and her family do not lose more precious time?

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