EPILEPSY DEATHS REGISTER

Motion Text

That this House notes that there is a serious gap in information on epilepsy mortality and congratulates SUDEP Action, the working name for Epilepsy Bereaved, on the launch of the Epilepsy Deaths Register; recognises that the last national audit of epilepsy-related deaths led by SUDEP Action in 2002 found that 42 per cent of epilepsy-related deaths were potentially avoidable and was a powerful lever for driving improvements in patient care; and calls on the Department of Health and the Ministry of Justice to do all it can to support the development of the Epilepsy Deaths Register.