Hereditary angioedema awareness day (No. 2)

Motion Text

That this House celebrates Hereditary Angioedema (HAE) day on Tuesday 16 May 2023; recognises that HAE has a significant impact on patient lives and can cause unpredictable potentially life-threatening attacks; commends the important work patient organisations, such as HAE UK, and leading immunology specialists have done to support and advocate for those living with HAE; applauds the ambition for patients to experience zero swelling episodes or attacks; welcomes the commitments of the Rare Disease Framework to improve health outcomes for rare disease populations; and urges policymakers to recognise the need to increase clinical awareness of rare diseases, prioritise quality of life in treatment guidelines, improve shared decision-making processes, and ensure better access to psychological support.