PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA

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That this House welcomes the Government's decision to nationally commission services for the treatment of the ultra-orphan disease Paroxysmal Nocturnal Haemoglobinuria (PNH); acknowledges that without treatment with eculizumab patients with this chronic life threatening disease are left only with the options of recurrent blood transfusions and, in a small number, bone marrow transplant; and congratulates the PNH Alliance of clinicians, industry and patients who are working to ensure PNH services continue to improve patient outcomes.