Early Day Motion·EDM 248
Rare Diseases Day
4 March 202016 Signatures
Primary sponsor
Jim Shannon
Democratic Unionist Party — Strangford
Motion Text
That this House notes that Rare Diseases Day was on 29 February 2020; congratulates all of those people involved in the promotion of the message that although the disease maybe rare - you are not alone; notes the message, Rare is many. Rare is strong. Rare is proud; and joins with the sufferers of rare diseases through the UK in calling for more equitable access to social opportunity, treatment and care for the 300 million people living with a rare disease and their families around the world.