Create a Myalgic Encephalomyelitis (ME/CFS) Act

Background

Introduce an "ME/CFS Act" mirroring the Autism Act 2009, which must place a statutory duty on the Government to implement a fully funded, ring-fenced national strategy for biomedical research into the physical causes and treatments of ME/CFS, overseen by the NIHR and MRC.

Additional details

We believe ME/CFS is severely underfunded relative to its disease burden, and that open funding frameworks allow historical psychological biases to persist, blocking vital science. In our view the Autism Act 2009 proved legislation can mandate a national strategy for one condition. We call for a ME/CFS Act to permanently ring-fence biomedical funding, establish parity with other conditions, and find physical treatments.

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